Education, Support and Advocacy to those afflicted with CRPS/RSDS


About Us


Living with RSDS, Inc. is  a New Jersey  based non-profit organization. Our mission is to offer education,  support and advocacy to those afflicted with CRPS/RSDS, their family,  caregivers, friends, communities and medical professionals. We currently  provide free in person monthly meetings at two locations. 

The use of a tree as our logo stems from our belief that those of us whose life has been touched with CRPS/RSDS must weather all seasons, adapt, grow and have deep roots in order to survive. 

Living with RSDS, Inc. is a non-profit 501(c)3 organization founded in 1997 to offer education, support and advocacy for those whose lives have been affected by Complex Regional Pain Syndrome (CRPS) also known as Reflex Sympathetic Dystrophy Syndrome (RSDS).  CRPS/RSDS is a rare chronic neuro-inflammatory disorder.  This extremely painful and often disabling  syndrome is caused by a malfunction of the nervous system and immune system in response to a trauma. The nerves msifire causing constant pain signals being sent to the brain. There is no single diagnostic tool and CRPS/RSDS remains without a cure.



Meetings the first Tuesday:

  • 7:00-9:00PM
  • RWJ Somerset/The Steeple Chase Cancer Center
  • 30 Rehill Ave, Somerville, NJ 08876 
  • Please check Meeting & Events page for updates 



Meetings the third Tuesday:

  • 7:00-9:00PM
  • Community Medical Center
  • 99 NJ Route 37 East, Toms River, NJ 08755
  • 3/20 meeting cancelled due to impending weather
  • ​Please check Meeting & Events page for updates


Virtual meetings have begun!  

For dates, (also check meeting page) details and login information please email


The 4th Annual RSDSA/Living With RSDS   "Tame the Pain " charity  golf event will be held in October 2020.