About Us
Welcome
Living with RSDS, Inc. is a New Jersey based non-profit organization. Our mission is to offer education, support and advocacy to those afflicted with CRPS/RSDS, their family, caregivers, friends, communities and medical professionals. We currently provide free in person monthly meetings at two locations.
The use of a tree as our logo stems from our belief that those of us whose life has been touched with CRPS/RSDS must weather all seasons, adapt, grow and have deep roots in order to survive.
Living with RSDS, Inc. is a non-profit 501(c)3 organization founded in 1997 to offer education, support and advocacy for those whose lives have been affected by Complex Regional Pain Syndrome (CRPS) also known as Reflex Sympathetic Dystrophy Syndrome (RSDS). CRPS/RSDS is a rare chronic neuro-inflammatory disorder. This extremely painful and often disabling syndrome is caused by a malfunction of the nervous system and immune system in response to a trauma. The nerves msifire causing constant pain signals being sent to the brain. There is no single diagnostic tool and CRPS/RSDS remains without a cure.
All in person meetings are cancelled. Please see Virtual Meetings for meeting schedule.
All in person meetings are cancelled. Please see Virtual Meetings for meeting schedule
Virtual Meetings
For dates and details please check meeting page.. All meetings are via Zoom the first and third Tuesdays at 7:30 PM (EDT) For more information please contatc us at: lwrsds.crps@hotmail.com.
Memorial Contributions for John Knapp may be made via Venmo (@Lwrsds), Check or at the upcoming memorial. We are a non profit organization and donations are tax deductible.
3rd Annual Flame Out Walk to Extinguish RSDS/CRPS in Oakhurst NJ 9/12/2021
Color the World Orange on
November 1, 2021
Memorial Contributions for John F Knapp
.Contributions may be made via Venmo (@Lwrsds), check or at the upcoming memorial (soon to be scheduled)